Join us on IG stories March 31 for a NMOSD Trivia Tuesday! 💡
#NMOSDAwarenessMonth #NMOSDAwareness #NMOSD #NeuromyelitisOptica #RareNeuroimmune #ThisIsNMOSD #SRNA #YouAreNotAlone #LivedExperience #RareButStrong #SRNACommunity2
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Te invitamos a actualizar tus conocimientos en #NMOSD junto al destacado Dr. Michael Levy @mlevy18 en nuestro IX Simposio de Esclerosis Múltiple y Enfermedades Desmielinizantes 👉 presencial y online!massoeventos.com/ix-simposio-mu…X6
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En el #worldNMOSDday queremos crear conciencia sobre el correcto diagnóstico y tratamiento de personas viviendo con #NMOSD @TheSumairaFDN @NeuroinmunUC @SOCHEDEM1 @SonepsynChile
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"Disease...attacks (for #NMOSD & #MOGAD) can occur during #pregnancy, are common postpartum, & can cause preventable, long-term maternal disability. We offer expert recommendations for therapy choice, #infant vaccinations, & fetal & infant monitoring...." doi.org/10.1016/S1474-…
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An analysis of #Satralizumab safety revealed increased infection risk and highlighted vulnerable subgroups of patients with neuromyelitis optica spectrum disorder (#NMOSD).
Read more: bit.ly/41sEM2U
#RareDisease #Neurology
Satralizumab for NMOSD Linked to Infections, With Older Male Patients at Greater Risk
A pharmacovigilance study revealed infections as a safety concern of satralizumab in NMOSD, with some subgroups at risk for poorer outcomes.
From rarediseaseadvisor.com 1
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⚠️Women with #NMOSD have a risk of a severe and irreversible post-partum relapse. However, immunosuppressant medications can pose risk to pregnancy and may be contraindicated during breastfeeding.
🤔How to best manage these patients, minimizing risks?
journals.sagepub.com/doi/10.1177/17…BW7
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For many living with rare diseases, isolation can feel as overwhelming as the diagnosis. After her #NMOSD diagnosis, Sumaira couldn’t find support — so she created it through @TheSumairaFDN. Learn how she’s helping ensure no patient feels alone: amgen.ly/4dfas37
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#NMOSD 当事者5名が
プロの手でドレスアップしランウェイへ✨
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📌「メイクもおしゃれも諦めない」を実現
📌座談会では「確定診断までの苦労」などが語られた
⇩詳細は記事をチェックautoimmune.qlife.jp/news/20260323-…gIy
NMOSD患者さんがファッションショーに登場、CaNoWがレポートを公開 - 自己免疫疾患プラス
エムスリー株式会社が展開する、病気や障がいを持つ方の願いを叶えるプロジェクト「CaNoW（カナウ）」は、視神経脊髄炎スペクトラム障害（NMOSD）の患者さんを対象としたファッションショー＆トークショーを実施し、その様子をまとめたレポート記事を公開しました。
From autoimmune.qlife.jp 4
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Diagnosed with #NMOSD, lupus, and Graves’ Disease in 2022, SRNA community member and volunteer Andrew Jopson has navigated a challenging journey. Revisit Andrew's full interview at srna.ngo/men-nmo. #NMOSDAwarenessMonth #ThisisNMOSD
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Taylor Macey joins TSF as Director of Patient Engagement.
Diagnosed with #NMOSD in 2019, she’s dedicated to amplifying patient voices, leading programs and bringing hope to the rare neuroimmune community! 🩷🧡�sumairafoundation.org/welcome-taylor…HZrH
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NMOSD is a rare neuroimmune disorder that can show up in different ways: There’s no single “typical” NMOSD experience.
Amber’s message is simple: listen without judgment. Every story is real, and every voice matters.
#NMOSDAwarenessMonth #NMOSDAwareness #NMOSD
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Living with NMOSD doesn’t mean giving up what you love. What are the things that bring you joy and purpose? Share with us below. ⬇️
#NMOSDAwarenessMonth #NMOSD #ThisIsNMOSD
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🌺On February 21st, we hosted a Patient Day in Honolulu for #MG, #MOGAD and #NMOSD in collaboration with Dr. Natalia Gonzalez Caldito and Dr. Alexandra Galati.
Click here to read the event recap and view our photo gallery:lnkd.in/dzimqQgFqU
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